Able friends: I am not your inspiration porn #inspirationporn #disabilities #epilepsy #chiari #ptsd #bipolar

My jaw is still on the floor and tears are still flowing from eyes. I get it. I feel it. These words are so true.

Karrie higgins

I woke up this morning after a fitful and sweaty non-sleep to a Facebook feed of inspiration porn. Three of the posts or memes ended with some variation on “What’s your excuse?”

My “excuse?” My Chiari, one of several neurological disabilities I have, is acting up, which means:

  • my skull feels like it is trying to separate from the dura mater
  • crushing pain in the back of my neck
  • poor coordination –  I dropped a glass from lack of coordination. A shard embedded in my foot, and I actually walked off with my foot bleeding and forgot –at that very moment–what had happened. My husband came home and found the glass, which he cleaned up. Which leads to the next symptom ….
  • brain fog
  • somnolence
  • dizziness and syncope
  • word-finding issues, which seem a bit better this morning, although this post has taken 2 1/2 hours. I’m on the same sentence in the book-in-progress that…

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